Our Big Day ???

Hi everyone,

Steff & I are here in a "pre-surgery " holding area. We came to clinic this morning as usual. I went to get Steff a smoothie and when I returned She calmly stated that Dr Kareem popped in, stated " don't leave, we may have some organs for you!" Nine hours later , here we are waiting to see if the organs are viable. PLEASE PRAY FOR US! Hopefully this is our big day. I am a nutcase. We will keep you posted as events unfold. My beautiful wife is doing awesome. She is fantastic.

Steve.

photos from dawson family visit

Rob walking baby Bodhi. He loves his daddy.

Ruby, daddy & mommy

View of Carnegie Mellon from the 36th floor of

the Cathedral Of Learning University of Pittsburgh

The whole family

Grammy & her beautiful children

We are freezing in Pittsburgh

Sunday
December 12, 2010
9:00 pm east coast time


Okay, it has been a long time since my last blog. I have had a tough 2 weeks, except having the kids here for 3 days, that was wonderful. Unfortunately, I wish I had been feeling better but I sure enjoyed having them.

The weather here is strange. In N. California we get dumped on with snow. Here there are only these little icecycles that kinda dance their way to the ground. Just enough to making going out miserable. We are still waiting for that "snow blizzard" to hit us. It was forcast to start Wednesday, then Friday, now today and it is cold; 24 degrees and not a snow flake in sight.

Ruby and I put puzzles together, made Christmas tree ornaments, painted and even played a game called Chutes & Ladders. Remember when you were a kid and played that and CandyLand? She kept saying, "I am going to win! I am going to win!" and by golly she did, fair & square. Rob & I just looked at each other and shook our heads. She is so full of spunk and you never know what is going to flow from her mouth. Bodhie is so beautiful! He is good, only cried when he was hungry. (which is most of the time.) We took him to the Frick Mansion, The Cathedral of Learning and out to dinner, sleeping the whole time.

The good news is, after a visit to the retina specialist, I have no cataracts, just very dark eyes from being out in the sun all the time. Protect your eyes from the sun, it does damage your eyes.
Not so good news... I apparently am suffering from adrenal insufficiency. Adrenal glands are those glands that sit on top of your kidneys. They control such things as your cortisol, urine output and help the kidneys out. As a result I have decreased kidney function and a huge belly full of fluid. I am so miserably uncomfortable and the IV makes me walk like a little ole drunk guy. That is only one of many side effects. Then, to top that off, my blood chemistry is so out of whack that they are holding my Spa treatments.(not a massage spa but 3 IVs that are supposed to help by getting rid of the fluid. It is frustrating but I am trying to be patient. (Giggle, not an intended pun.) The truly frustrating thing is that typing is a struggle.

This will have to be a short blog... I wish I was able to write more about our weekend with the kids. Photos will follow, if I can manage it.

Please give prayer for Janice, she has genetic cardiac issues, Steve's dad, Mel, my dad's cousin, Beth, who is suffering from colon cancer and all the folks here that have it tough. Thanks to Dianne & Lon for the Christmas package, Jan, Claudia & Aunt Betty for the loving care they give our precious pets. Thanks for all the wonderful emails that encourage us, bring news from home, and wonderful pictures. Thanks to Nancy & Frank, Jane for all her texts and support. Thanks to Rob & Heather for lifting up our spirits and making the journey to see us.

Gotta get to bed & up to get to clinic by 7am for the 5Th day. (Just 3 more days to go.)

my favorite scripture for the week...

Be merciful to me , O God, be merciful to me.
My soul trusts in you;
And in the shadow of Your wings
I will find my refuge.
Until these calamities have passed by.
Psalm 57:1-2

Be blessed with the Christmas Spirit,
Steph & Steve

Missing everyone soooo muc

Still waiting, waiting, & waiting. Working on 6 months.


Me and my dried up skin.


rob & heather

Transporter Ruby & Bodhi Ducky

Tuesday, November 30, 2010

UPMC 7West Clinic

Hey all,

Wow, what a wild week last week was. I somehow gathered some bad bacteria in my intestine, no other explanation needed. It landed me in the hospital for aprox 24 hours. Then the antibiotic caused my INR (blood clotting factor) to jump to an unheard of 6.7. Steve says there is silver lining in every cloud... it caused my meld score (determines my standing on the list for a liver) to jump to 38. Top number before becoming a Status One in the nation is 40. So how about that.

I am sitting in clinic getting my Tuesday Spa. Overall I feel good, but everyone is panicking about my blood results so they are going to keep me here for about another hour. Oh well, it gives plenty of time to blog. Besides the chairs are comfortable.

Enough medical gibberish... We have enjoyed the beautiful brisk weather but according to the weather soothsayers it is supposed to end this weekend with snow. When it snows here it is mostly constant little snow flurries where at home it just dumps. They say that once it starts it doesn't quit. I don't think they gather a lot of snow but their cold is definitely COLD. We have loaded up on electric blankets and throws(also electric) besides our apartment seems to stay warm. We now have enough clothes so going out is not a problem.

What have we been doing? Well, besides just hanging out, working out, cooking & eating, not a whole lot. We went to Phyllis & Skip Grahms' home and had a wonderful lunch (she cooked lo sodium just for me.) Poor Steve, it has been so long since we socialized that he talked poor Skips ears off. I have never heard him talk so much. They lived about an hour out of Pittsburgh in the country and built their home; it is gorgeous. Unfortunately they are no longer able to maintain the property so sadly they are having to sell. The husband, Skip, was blind for about 10 years but was able to make stained glass windows that are incredible. It is not easy to do with your sight so to accomplish this without sight is amazing. Today he sees, but they don't know for how long. He is in our prayers. It was wonderful to get out of the city and into the country.

The day before Thanksgiving was pretty tough for me. I miss everyone so much and my pops traditional Thanksgiving dinner. But then it turned out just fine, our church had a dinner and we went to that. The company was wonderful and the pastor made a point of coming over and talked with us for about an half hour. The best part was I found someone who has had horses and was just as passionate about riding as I am. It was refreshing. He did a lot of trail riding and some barrel racing. I was in heaven for about an hour.

Today we hope to go get a Christmas tree. We already have ornaments from Nancy and Frank. The kids are coming this week so I want it to be Christmas like. We are hoping to go to Santa's Parade but then it is supposed to snow so we might have to find something else to help us get in the Christmas spirit. I am worried that I will not get in the spirit without my family & friends, so I am fairly adamant about decorations & decorating. I am looking for a special nativity scene; you can't celebrate Christmas without Baby Jesus in our midst.

Thank you all for your healing prayers and emails special thanks to Steve's mom, Ellie for the delicious mandarins; more thanks to Claudia for being persistent on having Jack and Annie vaccinated and wormed. You are awesome. Thanks to my sister, Jane who sends me inspiring texts. Thanks to Jeanne and Fred for the photos of their adventure. Extra Thanks to Nancy & Frank for the Christmas decorations and making us feel at home in the church. Another very special thanks to Lonn and Dianne we will be forever appreciative for the help. And finally love and thanks to my mom for being my mom.

Praises & thanks to our Lord for keeping us close.

Until next time... Agape

Steve & Steph

Sunday, November 21, 2010


Hey all! So sorry that once again I am so derelict about keeping up my blog. I have no real excuse except I get lazy at night and can't find the time during the day.

We have really grown to like Pittsburgh. It has so much to offer and things to do. We can not find enough time to do everything so we try to see something once a week. I want to write a blog on nothing but Pittsburgh and all the things we have seen and hope to see. Maybe next blog.

I am still feeling pretty good, with only moments of not so good. But that passes and then I am fine. I still have to go to clinic on Tuesday & Thursday and this week a full day at the doctor's office. It wears me out but that is to be expected. God is so merciful to us and is helping us in so many ways. I do not think we could do this without our faith.

I went to the eye doctor to see about a new prescription for my eyes. My sight has progressively gotten worse for the past six months. So we went and found out some not so good news... I have cataracts! I couldn't believe it, but apparently with all the meds I take they promote cataracts. The problem is that while I can get them fixed, it may take a while to have Kaiser to give their authorization. Steve has already fought with them. This out of the transplant contract and we are having trouble trying to explain to them we are NOT on vacation. Then to add to the pressure, if I don't have it done before the transplant the cataracts will increase 5 time faster due to the meds I have to take after surgery and on top of that, there is an increase of infection and probably will not be able to have the surgery until at least a year after surgery. By then I will be virtually be blind. We are very worried about this, but then it is in God's hands. Just pray for a quick authorization and even faster surgery. I can not believe I will not be able to read or write or sew. I know something will come through for us.

We have found a new church closer to home, it is called Calvary Baptist Church. It is small and very very friendly and caring. We really like the Pastor and the whole church has taken us in just like we have always been there. We may be going there for Thanksgiving dinner.

We also have an invite to some friends we met in clinic. We went to their home on Friday for lunch and had a lovely meal and great companionship. They live in the country about an hour out in a beautiful home in a beautiful area. Steve talked their ears off, I think it has been too long since he has talked to someone in a social setting. At first I was embarrassed but then he was enjoying himself so much I just blew it off. Poor guy all he talks to is the hospital, work & his mother. Oh! and Rob.

Speaking of Rob... he and Heather and the kids are coming on the 2ND of December and staying for about 4 days. I can not wait. We will actually be able hold and kiss little Bodhi for the first time. I wish they could stay longer but Rob wants to come back when I go into surgery and besides that is probably all I could handle right now. We will be able to go and stay with them a while after the surgery and recovery.

I will send photos of Thanksgiving and of the kids. But I need to go to bed, tomorrow is an early day and a busy one. I will not promise a blog in the next few days, but I have so much more to write about I am going to try.

Many Thanks to Claudia & Ted for taking such awesome care of Annie & Jack, Aunt Betty for her time with mom & Buddy, Jane, John and the kids for babysitting Buddy. I know he loves to be with you guys. Thanks to all our emails, phone calls and prayers, please know how it gives such encouragement. Many thanks for taking the time to read my blog.

Have a Great Thanksgiving and many blessings to all. In Jesus' name and love,
Steve & Steph

Great Days

Wednesday
November 10,2010
UPMC Clinic


Hey all,

Someone complained that my last blog was boring... so I have had to rethink my blog direction.

First off, I am still doing well, despite a bad case of laziness and addiction to my Kindle. If it wasn't for Steve I would just spend my precious time laying around reading. He is our social director and appointment keeper.

Yesterday we went to the Heinz(after the famous Heinz ketchup king) Museum of Art and were able to see an exhibition brought here from the Vatican in Rome. Some of the pieces had never been out of the Vatican. The display depicts the history of the catholic religion as related to the Vatican. They talked a lot about Peter & Paul, which is the subject of many pieces of art. The other interesting item was that the style of art & architecture was taken from many cultures. The art also follows the periods of the history of Europe, the history of each Pope, and the many changes over the centuries.

Unfortunately, they did not allow cameras, they would not do justice to the great art anyway. They showed Michelangelo's sculpture of Jesus lying in Mary's lap after His execution. The sculpture was so intricate and lifelike,the stone was incredibly soft looking that you wanted to reach out and stroke it. They had a piece of the Sistine Chapel displayed on the ceiling just like it is in the Vatican. It was the piece where Jesus is leaning towards God. It is very famous and there are posters, puzzles & such using this peace.

There is so much more that I could write about but it would never due justice to the marvelous display.

Where the Vatican Splendor was spectacular, the circus was a great disappointment. It only had half of the parade that it usually has, the clowns were less than entertaining, they only had one ring, the physical feats were mediocre, they did not have horseback vaulting, (the horses just went around in circle) flying trapeze, jugglers, or gymnasts. Over all it was about one-third the circus that I saw in Sac 5 years ago. Despite my disappointment, Steve enjoyed it (but then he's never been before.) I have photos so my next blog following this one will be photos.

We are beginning to become familiar with Pittsburgh and are enjoying it more & more. The city is actually very beautiful with its beautiful gardens & parks, the incredible architecture, and all of the museums. Next adventure will be a walking tour around downtown emphasizing the historical buildings and churches.

Well, other than the field trips, we try to eat at home, work out 3 days a week, walk along the river, clinic twice a week, and church. The hours in the day just fly by.

I have many folks to say "Thank You" and may Jesus always be in your heart. Dianne & Lonn for your incredible ( much needed) generosity and beautiful cards amaze and bless us. (I will be calling you very soon.) Jan B., who is taking loving care of our Lady for your generosity and especially for Lady. Thank you mom for your phone calls & taking care of Buddy. I know he loves you and would be lost without you. Many thanks to Kim R for calling each week with barn & horse updates and occasionally a good venting session. Thanks to my son & daughter-in-law for the daily phone calls, and the daily photos & updates on Ruby & Bodhi. Thank you to all who are so diligent in your prayers. I feel the Lord is with us and helping us to be calm and accepting of the situation. Please continue with your prayers as they are the reason we are doing so well.

Thank you so much for taking the time to be interested enough to read my blog. (Hopefully, this isn't too boring.)

Watch for photo blog.

God is with us all,
Steph & Steve

A New Way to Blog?

Tues
October 26, 2010

I am going to try a different approach to blogging. I am going to write about each day, that is days with something to write about. Maybe this way I can keep up with my blogging. Sometimes it has been so long that it becomes a little over whelming to try and blog a week & a half in one blog. So here goes...

We went to see Ian Anderson formerly of Jethro Tull. His group was incredible and very accomplished musicians. The first hour was spent playing Celtic folk songs & instrumentals. The second half, he played songs from his Jethro Tull period. He has an incredible lead guitarist who is classically trained. He is also an accomplished flamenco guitarist and performed an incredible flamenco piece. As for Ian, he is quite the showman. You would never guess that he has been in the music industry for 40 years. Most older rock guys have a raspy old voice, but he sounds just like he did 40 years ago. It was a fabulous show in an incredible theater. (Sorry no photos were allowed.) If you ever have the opportunity to attend one of his concerts, be sure and go.



Wednesday
October 27, 2010

Went to see Dr. Kareem today. He was so pleased with my status. The only thing he wants me to do is go to the clinic twice a week for spa treatments to help control my ascites (bowling ball belly.) He even let me choose the days I want to go. I told him I wanted Tues & Thurs so I could work out on Mon, Weds, & Friday. He was shocked. He said "You actually want to go workout!" Then he explained that they are trying to get their patients to exercise all the time and they just refuse. I think he was very impressed. One big brownie point for me.


While we were waiting to go see the doctor, we met a guy and his mom from Tennessee. He is a visceral transplant and has been waiting for 2 years at UPMC. Well, Steve & I got up and went to go to lunch and when we got back they had received "the call!" and was going in for his transplant. It was very exciting and he is in our prayers.


We received permission from Dr. Kareem to go to Lorain, Ohio. That is where my father grew up. He still has aunts (very elderly) there and they are very excited to see us. They are having a memorial mass for my dad Friday, then going out to spread some of his ashes on his parents graves. We are looking forward to the road trip.


So until next blog session, God bless all and put John in your prayers for a successful transplant & easy recovery.


Saturday
October 30

We did not make it to Ohio. My dad's Aunt Dolly was going out of time after the mass. She was very excited about us coming but wanted us to stay with her so we could visit. We are going to try to go next week. I will write about that later.


Thursday we went and worked out after a 30 min walk on the river trail. The work out went well; I felt really strong and pushed myself to the max. I felt pretty good afterwards, just a little shaky. We drove over to the Pretzel Factory and bought a cinnamon-sugar pretzel. They are great and absolutely no salt. When we got home I took a long and deep nap, I was wiped out. That will teach me that I still have limits. The rest of the day I spent on the couch watching total garbage all day.

Friday we went to Macys and bought Steve's birthday present and guess what... I used my own money. I demanded an allowance each month. Since Steve is ALWAYS with me when I shop; I hear "Do you really need that?" "That is an unathorized purchase." "Wait until next pay period." It is not like I am a shopaholic, but when I see something I need or really want, I don't need a bunch of chatter about it. So, now I have my own money to spend as I want. It isn't much but it does add up quickly. Steve has rarely denied me anything I want, but I don't need the rehetoric that goes along with it.

For Steve's birthday we bought tickets to the Barnum & Bailey Circus. He has never been, can you imagine that? My dad used to take us about every 3 to 4 years. I have loved circus' since I was little and used to read every book I could get my hands on. When we lived in Tampa, Florida the winter camp was located in Sarasota. They also had a museum that was dedicated to Barnum & Baily. The last time I went was at the Arco Arena with my mom & dad, sister, Jane & Laura. It was fabulous.

I will write all about it next week.

Saturday morning we went and worked out. I took it very easy and ony did 2 sets of 15 reps. I felt much better afterwards.

We went to the movies and saw "Wall Street: Money Never Sleeps." It was long and boring, don't waste your money. Steve liked the end but I found it unbelievable.

Tomorrow we are going to church at the little church we have been going to. They have just wrapped us in their family and pray for us. Last week they had a guest pastor. He is retired and from the "old school." He was wonderful and had everyone stand in front of the podium and said a prayer over each one. (There were not very many folks, so it didn't take very long) I really felt the presence of the Lord in his sermon & prayer.

Well, that is all for now. Things are going well for us and we feel truly blessed by your prayers, good thoughts & wishes. Please pray for John and the sucess of his transplant.

God be with you & your needs,
Steve & Steph

It's been a while...

Monday Morning
October 25, 2010


I know it has been a while, but it is because we have been doing well and have been busy. It seems as if there are not enough hours in the day.

We have managed to stay out of the hospital, except for bloodwork and doctor apt every other week. We are getting to know Dr. Kareem a little better and he us. We really like him even though he is a tough doctor and a control freak. I have just decided that I better do what he tells me and stop whining. One of the nurses heard me complain about an order and boy did she let me have it. She told us that if we don't mind the rules, Dr. Kareem comes unglued and starts screaming at you..."Are you STUPID?!! Do YOU want to DIE?!" It was kinda comical, but she was as serious as superman. I certainly don't want my surgeon mad at me before the surgery any more than I want the waitress mad at me before she brings my food. So needless to say we are behaving ourselves these days.

We have been in clinic for the past three days. Within 4 days my weight went from 122lbs to 130lbs. So I am here getting a "spa" treatment. My weight is down to 121lbs as of this morning so things are working. The only problem is it is hard to make plans cause you never know what is going to happen from day to day.

We have been going to the gym and working out for 3 days a week. We work with a trainer once a week. He makes Steve sore afterwards but not me. I know that I am working out to the max because the last 3 reps are challenging. Steve swears I am starting to look like a weight lifter. But today a nurse described my legs as "skinny get away sticks." I don't think she knew that I heard her comment. Oh well, when all this is over I only hope I weigh the same as I weighed before getting sick.

So, what have we been doing? Errands, shopping, we even went to the movies and saw "Secretariat", it is fabulous, even if your not a horse lover. It is one of those "feel good" movies and what makes it even better is that it is true. He was the last horse to win the Triple Crown and he doesn't even go lame or die. Please go see it.

The theater is within walking distance from our apartment and it is beautiful. It has 14 theaters with comfy seats and a huge snack bar, plus a cafe with pastries, sandwich's, and fancy coffees. Of course all that costs a small fortune. We just sneak our own in and unfortunately I can't have popcorn.

We have tickets to go see Ian Anderson, the leader of Jethro Tull from the sixties. He is a tremendous flutist and guitarist. It is being held in the Carnegie Library in that incredible theater from 1890's. I will have to get in there and get some photos. I know we don't have any thing close to this in Northern California, maybe the Grumman's theater in LA.

We adopted a little orange tabby kitten, his name is Glenn and presently he has a terrible cold so we are taking him back to the rescue shelter. I should not really be exposed to any germs, so Steve confined him to the back bedroom. He is not very happy back there, but Steve goes and visits him, plays, pets and talks to him. Glenn is so sweet and loving, but since he has not been feeling well he only plays for a few minutes then is ready for a nap. So we will see whether we get to keep him or not.

This blog has been long enough for even the most devoted folks,(my sister Jane). Oh! one more thing, we celebrated our 26Th anniversary. We were going out to dinner but my increase in fluid
did not let that happen. Steve bought me a beautiful porcelain cat that he saw when we were at Mayo and a beautiful sweet card. I gave him a kiss and fixed pulled pork sandwiches with macaroni salad(his favorite). Then we stayed home and watched a movie.

Ok, just a couple of prayer requests, praises, & lots of thank yous. My second cousin, Beth, Chris's sister, has cancer of the colon and after surgery they found more cancer behind her uterus. She is going to have some serious chemotherapy plus she does not really feel good about her doctor. We wish her well thru prayer. Much praise for our good health and ability to go out and about. We want to thank all of you who read our blog and then comment. I appreciate your comments and words of encouragement. Thank you to my granddaughter, Ruby for all of the beautiful works of art she sent. Many thanks for all of you for reading my blog, remember we love comments. Once again a huge THANK YOU to Lon & Dianne for your incredible gift and for the beautiful apron (yes, I love aprons & wear them always). May God bless you special.

Well, that is all for now and I will once again try to blog more often.
May God Bless You All,
Steph & Steve

The Dawsons Oct 2010

October 2010 The Dawsons













Daddy, Ruby & Bodhi hanging out.
















Heather & Ruby spending a day at the pumpkin patch. Ruby dressed for the occasion; crown and all.



Laughing out loud for mommy.




















"I love my big sister. She is so amazing."

Photos Carnegie Museum of Natural History

Just a few of the photos from Carnegie Museum.

These are some of the smaller animals. Above is a photo of Rob and a prehistoric turtle.

Where does the day go?

Thursday,
October 14, 2010

Praise to God

What can I say other than everything is going pretty darn great. We have been so busy just feeling good and enjoying the fall weather in Pittsburgh. God is so awesome to us and we are so blessed to have this time to enjoy.





Rob arrived Friday, Oct 8Th about 3pm. We had four glorious days with him. It was so relaxing and pleasant. Poor guy, he was exhausted after dealing with a 2mos baby and demanding 3 yr old who adores her daddy. (I can just imagine how tired Heather must be!) He was able to catch up on his sleep, but we kept him busy during the day. He cooked for us which was fabulous. We ate on his cooking for 3 meals and still did not get our fill. What a treat!

Rob's great cooking still did not keep us from taking him to the wonderful restaurants that Steve & I have discovered. Then on his last evening we went to a restaurant called "Mitchell's Fish Market" which is owned by "Ruth Chris' Steak House." It was delightful, the fish was awesome, the service was outstanding, and the prices not to bad. We plan on going back on our anniversary.

We showed Rob some of Pittsburgh's sights and mostly the architecture. On Sunday, we went to the Carnegie Museum of Natural History and the Museum of Art. The science section had the most incredible display of prehistoric animals and plants. The museum is famous for its dinosaur and prehistoric laboratory that have world class scientists that travel all over the world and then bring fossils & bones back to work on. The displays are well done and it is so interesting. They also have videos that explain about the different periods and the theories of the distinction of the dinosaurs and plants. It is all very interesting.

I have a very basic and uneducated theory that God was playing with the development of the prehistoric period. Then decided that He needed us to make His creation perfect so He caused the demise of the early dinosaurs. Then created other animals before He created us. I know that this is probably an immature and naive thought process, but it is hard to deny the facts of evolution. The museum was very firm on not suggesting any evolution or religious beliefs, it just told about the life and development of prehistoric animals. Besides He may of created the dinosaurs for our consumption of oil. You think? We know that He has His purposes and reasons and we are not told about His plan except what is written by Him. If you can enlighten me on this theory please do so. I would love to be informed.

The art museum was beyond anything I have ever seen. It had art from all periods, styles, and cultures. The religious art was something else. It tells the story of Jesus and his disciples and the many books of the New Testament. It did not matter what culture or church the art represented it was all truly holy. I attempted to take photos, but with the lighting, they did not come out very well. There is absolutely nothing like being up close and personal with the paintings and sculptures. We hope to go back as 3hrs and 45mins was not enough time.

We had a doc's appointment on Wednesday and I am officially on the list. As the list stands Oct 8, there are only 3 other people on the list with me. The doc did not give us much encouragement about when or how long we will be waiting. One thing they told us was that we can go to visit Rob and Heather as long as we have a way to get home withing 4 hours. I am ready. I want to see the kids so bad. Other than that he was thrilled at how good I am doing and that my bloodwork is actually very normal.

I am feeling great and am anxious to go and do. My weight has been stable at 120-122 pounds even though I eat all day long. We have a long list of places to visit and we are beginning to enjoy Pittsburgh.

Well, I could go on but I will save some for next time. I have so many people to thank for your prayers, phone calls, emails and cards. Special, Special thanks to Mom & Jane & Barbara for getting our winter clothes and getting them in the mail. It is getting chilly here. Special prayers out to Steve's dad who has lost his eyesight in one eye. We pray that the disease does not affect the other eye. Praise to God for Aunt Betty's relief of the shingles and her celebration of her birthday. Thank you to Pam and Paul for sending the workbook to the Wednesday night bible study. Incredible thanks to Bud & Dianne for their most generous gift and the beautiful apron. The Lord must have put in her heart to make me the apron as I love aprons and am lost without them. Prayer to Anna Sue for healing and no more cardiac scares.

We are still praying for a church and church family that is fairly close by.

Many Thanks and Praises to our Lord for these wonderful days and health. I know He will be with me when things become challenging and I pray that I will remember these blessings.

Bless us all, Steve & Steph

ps. I was able to publish some photos, more coming tomorrow.

Yeah! We are back on!!!

Friday, October 8, 2010

God's Grace and healing are incredible. We are finally listed and now the big wait for the phone call. There are so many murders, motorcycle accidents & pedestrian run downs that if everyone was listed as a donor, we would already be transplanted.

We are so sorry that it has taken so long to get back up on the Internet. Believe me when I say it was frustrating and expensive in the long run. Without the details, it is easier to just call the experts, and cheaper in the long run. But here we are, in God's glory.

I am doing fabulous! I am finished with the clinic visits everyday and the antibiotics as well. We are now down to just 2 blood draws a week and one doctor visit every other Wednesday. We are having a ball and you would think we would be bored but not so.

We have been busy getting our nest ready and buying winter clothes. We found a REI store and LL Bean and were able to buy light winter jackets and snow boots. Steve loves his boots and I can't get them off of him. He would probably wear them to bed if I let him. To finish our wardrobe, Mom and Jane are supposed to go up to the home and get our snow coats and more winter shoes and hopefully sweaters.

We joined a 100+ year old library that has the original athletic club as well. I wrote about it in an earlier blog. They have a good personal trainer that is helping me with my workout. I am only able to workout for 30 minutes and with light weights. The machines are some of the best I have worked with and believe me I feel good when I am finished. The biggest plus is that my doc was extremely impressed that I wanted to do this and gladly signed all the papers. Anything to impress the boss and I am happy.

Saturday, October 9, 2010

Rob arrived yesterday! Happy days for us. For Steve, Rob fixed his fax machine, and put a cabinet together (in 1/4Th the time it would of taken Steve). For me, he is cooking dinner (salt free) and just being here. We are planning on trying to get to the Carnegie Museum of Historic Science & Museum of Art this afternoon. It is supposed to be spectacular and have one of the greatest paleontologist exhibits in the world. We are very excited. As for the rest of the weekend... probably just relax and enjoy each other. He leaves for home on Tuesday morning, I am sure Heather will be exhausted and looking forward to his return. I am so thankful that I have such a generous daughter that allows Rob to come and see me. (Especially since their 5Th anniversary was Friday.)

Where do the days go? We wake every morning and say, "What in the world are we going to do today?" Then the day begins and before we know it, it is 8pm and the day is over. We are so very thankful that God has been so generous in His Grace and given this time and health to do so much. I try to remember to live every day like it is my last and to edify God in all I do. I hope this becomes a habit so that when I go through our challenging times, I am able to maintain the same attitude.

Please do not forget the prayers, I know that is what is sustaining us and has brought us God's Grace. We so believe in the power of prayer.

Steve wanted to make sure that everyone is aware that he has joined the volunteer fire department in our community. I am so glad that he has something to take his mind off of me and work. So far he is really enjoying it.

Thank you all for all your prayers and may God bless you as He has blessed us.
Steph & Steve

**Photos coming soon!

Just a quick bling

Monday, Sept. 27, 2010

Our internet service is down and we have been unable to use our computers for the past 2 days. The cable guy is supposed to be repairing it now. We shall see. Be sure that as soon as it is up I will send a full blog with photos.

On the medical front; the lymph nodes were negative! Praises to our Lord! Only thing left is the results of the cardiac stress test and those should be in today. We have an apt at the clinic Weds and should be listed by then.

At this moment, we are sitting in a library in our community that was built in 1906. It is beautiful with ornate spiral stair cases (no elevators) and a full athletic club as part of the original library. They have athletic photos and trophies dating back to 1908 all over the gym. It is quite something. I will send photos (it even has fire places through out.) I am looking forward to spending a lot of the winter here. Everyone else can go to Starbucks!

Kim got off on Saturday morning, we miss her. She was such a joy and what a good sport. I will tell all later and show loads of photos.

Sorry, but I have to go now. We will be back on line, hopefully, soon. If you emailed me I will try to get to you as soon as possible.

God is Great!
steph & steve

Busy Days

Tuesday, Sept. 21, 2010
Kim's Visit To Pittsburgh


Things are great here, we are spending our mornings at the clinic, afternoons we visit the sights, and late afternoon we nap then we either go out or I cook dinner. That's about it. It doesn't sound too exciting but then I am a bit challenged and Kim is a terrific sport about it all. She just goes along with anything and never says a negative word. It is such a pleasure having her here with us. Steve is really enjoying her, he plays his silly little games with her and she just laughs at him. We love her dearly. Not to mention that she is setting our computers up so that they are not angry at us so often. We are very grateful.

So far we went down to Carson Street and walked the street of many bars, restaurants and small shops. It is one of the night hot spots in town. (We went at lunch time.) We had lunch at a restaurant that used to be a gas station and is called the "Double Wide Bar & Grill." Steve & Kim had what looked like the best hamburgers they have had in a long time. I had a fabulous salad.

Today we went to Phipps Conservatory, which we enjoyed a great deal more this time. They are redoing some of the displays, but it is still something to see. We went through the whole thing this time and were able to take more photos. We were even able to go out to the outside gardens. The only disappointment was that the butterflies have all left to go to the south, so we only saw 3 or 4 still hanging out. But we could imagine what it was like a month ago or so.

Tomorrow I have clinic then have to go to the transplant clinic to meet with my doctor. We are hoping that they will have some news of the lymph nodes as well as tell us that we no longer need to continue the antibiotics. They are really starting to get to me, especially the vancomyacin. It is a very toxic med and I have only been able to tolerate one dose a day if that much. I really want this to end, it has been over 4 weeks now & enough is enough. But of course, that is up to the doc(boss).

Tomorrow we are going to be in clinic all day so sight seeing is out of our plans. Hopefully, Thursday we will make it to the Carnegie Museum of Natural Science, then the Just Ducky tour, and an evening at the IMPROV. That is the plan, whether time allows or not we will do our best. I just wish that I had more energy and less clinic and IV time.

I want to send our love and heart felt thanks to Lonn & Dianne Fisher for the beautiful card, photos of the family reunion and their incredible generosity. They have been undying support for us and we wish them well and good health from our Lord. Thank you Trevor for your beautiful birthday card, I appreciate it any time of the year. And a BIG HAPPY BIRTHDAY to Trevor as well (he will be 13 on the 26th.) Have a great time at your birthday party.

Well, that's all the news I have for the moment, besides Kim wants my computer to make some adjustments so I guess I better give it up while she is here.

Thank you Heavenly Father for the good days and wonderful friends and family you have truly blessed Steve & I with. Please bless all these wonderful folks for us.
Agape,
Steve & Steph

In Great Need of Prayer

Friday, Sept. 17, 2010

This has to be a short post and mostly just a plea for prayer. It has been a challenging week.

Wednesday we had an appointment with the oncologist regarding to those lymph nodes that lite up on the PET scan. Mayo had already found them, CAT scanned them and felt that they were not worth a biopsy, so gave us clearance. But Dr. Kareem decided that they needed a further look-see so we went to see the most wonderful woman doctor who is an expert oncologist regarding breast cancer and lymph nodes. She felt the same as Mayo but she has been working with Dr. Kareem for quite a time and knows how funny and anal he is about such things. So she ordered a ultra-sound which lead to another mammogram by a fabulous radiologist. Well, to make an already long story shorter, the docs decided to do a biopsy. Of course, Dr. Kareem decided to go ahead and remove the nodes then biopsy them. Sooooo.....

Today they removed 5 nodes, that were larger and shaped funnier than they thought. We will know whether they are cancerous or benign by next Thursday. Other than that everything else tells the docs that they should not be cancerous. The surgery was a breeze and everyone including the doctors were so compassionate and caring that I was actually okay with it all. I give much praise for the empathy of everyone and for the smoothness of the whole procedure. I am sore but NOT laid up. (Got that "grapefruit- growing- under- my -armpit feeling" again).

I am asking for prayers for benign and harmless nodes and for a good week of lots of fun activities. I have much to be thankful for but if it is cancer then the transplant is off until it is cleared. So there is a lot at stake here. Please, there can not be too much prayer as we are always in prayer. God is so wonderful and awesome, yet His purpose is often impossible to grasp.

We are pretty much ready for Kim. I just hope she is patient with all of this medical garbage and doesn't mind being dragged to the hospital. We still have plenty of places to visit and a full agenda for her, so it should not be all doctor stuff.

I will keep everyone informed and you will know as soon as we find out.

Much love to all,
concerned in Pitts,
steve & steph

Photos Anyone!

Bodhi beginning to smile!

My one & only rib, boy was it GREAT!

Ruby in the Atlantic Ocean!

The only thing missing from this beautiful picture is our beautiful Heather.

More coming of Pittsburgh!

And More Photos

Hurray!!! It's Movin' Day!!

Wednesday, Sept. 14, 2010
7:25am

IT IS MOVIN' DAY!

Well, you guessed it... we are so relieved to finally have a space of our own. It is comfortable and the kitchen is awesome. Lots of dishes, counter space and a nice breakfast bar. (We need to find some cheap stools). I like the dinning room table because it is a nice size but only has 4 chairs. The furniture is in good condition, with the exception of a fairly small TV. We are going to check into upgrading to a bit larger flat screen. Think we are a bit spoiled?

We are only a few hundred feet from the river walkway and the mall is within walking distance. How fun is that? I have never lived so close to any store in over 19 years. Now, I have everything from Target to Macys. There are several good restaurants and a hugemous movie theater as well, even if I can't eat at the restuarants or enjoy a box of popcorn.

What's new on the medical front? Not a whole lot... I am still feeling great, with more energy and strength every day. I feel the Lord is reminding that there will be times of not so good and then times of feeling wonderful. I am grateful and praise the Lord for the good times and know that there is a purpose for the not-so-good days. (That is really easy to say and believe when things are going well.)

Today we have an appointment with the oncologist regarding some lymph nodes under my left arm. Mayo also had an issue with them but after further tests they decided that they were harmless and the risk of a biopsy was not worth it. I sure hope this doc thinks the same way.
We have all the films and reports to back that up. I am so ready to be listed and it is taking along time. Then Friday I have to go to the cardiologist and run another stress test, only this one is a little more involved than the last one. I have already been to the cardiologist once in Pitts but I guess the PET scan showed some abnormality and Dr Kareem wanted to make sure it was not threatening to the transplant. It is all in God's hands. I may be able to be listed on Friday if the heart & lymph nodes are okay.

I want to thank Karen for the lovely card and especially the prayer her friend wrote just for me. It is beautiful and very appropriate. Virginia, Teresa and the rest of the prayer group held a prayer session in which my concerns were prayed about. What a great group of prayer warriors. Thank you, Gail for the card, I so wish I was there to join in the bible study and fellowship. You can not know how I miss you all and all the comfort I received. I do so enjoy Pastor Todd on audio, and look forward to his video sessions.

Thank you to the equine dentist who not only put poor Buster's very bad teeth and jaw in better shape (not great shape he still has a great deal of work to be done). The best part of that was that the doctor comped the whole bill because I was having to spend my birthday in the hospital. You can imagine our surprise! Not only is God good, but so are His children.

Special thanks to our Aunt Betty for not only seeing that Buster & Zoe are receiving such good care but mostly for being the incredible Aunt that she is. We love you and don't know how we could get along without you. (We are praying for healing for you as well) One more thing, Aunt Betty thank you so much for being so hospitable to Buddy when he visits. Mom loves him and loves the fact that you like him.

Lastly but not least, Thank you Claudia and Annie for the lovely letter and beautiful videos. Annie stop that barking and start enjoying the other dogs. Be a good girl for Claudia or it is the dull, dark, gloomy kennel for you! We love you and Jack and miss you much.

My next blog, Kim will probably be here and I hope to write all about our adventures.

Much love and prayers to all,
Getting used to Pitts,
Steph & Steve

Praise to the Lord

Friday, Sept 10, 2010


What a wonderful week Steve & I had this week. I felt so good all week. We only had one day that was a bit of a struggle at the Clinic (and that was no big deal!) The docs were thrilled with my healing and the fluid stayed off my tummy. We even went somewhere and walked every afternoon. I am so pleased for this time of relief. It renews my hope that things don't always stay tough forever.

Sunday
We got out of Clinic at 10:30am so we decided to go downtown and go on the tour of the WWII Transport Ship. The day was beautiful in the low 80s and sunny. The ship was located next to Heinz Field where there was Pittsburgh Pirates game going on. We managed to find a cheap ($10) parking spot 2 blocks from the ship so it was an easy walk over. Once we got there we were struck by the hugeness of the ship. It is supposed to be the largest ocean sailing vessel ever made. It was also very ugly. If you have ever been on a destroyer or air craft ship they are all shiny and smooth looking. This looked like the work horse that it was. You could see the side rivets, it was very dull and used looking. But very interesting.

Well, we found the beginning of the line and started walking to what we thought was the end... and we walked...and we walked...and finally about a half mile away we found the end. So we parked our selves in line thinking "Oh, this can't be that bad." But it was an hour and 15 mins later until we were in view of the ship with at least 2 hours left to wait. Steve waited in line and I walked up to the hill found a bench and sat to rest. I could see the people up on the top of the ship, nose to fanny. And they were creeping along as slow as the line. So I thought about this a bit more and as disappointed as I was, I decided to bail. Many of you may not know it, but being raised in the military, I am intrigued by military stuff. Especially WWII stuff. So you can imagine how disappointed I was but I am beginning to learn my limitations, besides there is no nice bench to sit down and rest your bum on up on the ship. So we walked on.

On the way to the car we came across the Pittsburgh Rib Fest. Oh boy, did we hit the jackpot.
Even though I could only eat one rib, it was the best thing I have tasted in months. It had been 20 years since I've had a rib and this one was spectacular. Steve ate more. There were rib bbq'ers from all over the United States and boy I could have eatin' one from every stand. They are actual professional chefs who travel around bbq'ing their ribs, briskets, and pulled pork. There was no beef or chicken only pork. Everyone displayed all of their ribbons, trophys and stories of how they became rib connoisseurs. It was delightful.

The rest of the week was a breeze and we were able to get out and see a bit more of Pittsburgh. One of the things we did was buy some games to keep us occupied. So presently we are attempting to master ROOK, it is not difficult but the bidding is a bit tricky. We need to find some one who really knows how to play so they can explain it to us, the directions are not very clear.

We are officially moving into our new condo on Wednesday the 15th. Our new address is:

629 Waterfront Dr., Apt 1106
Munhall, PA 15120

My good friend, Kim Rawlings, is coming in from Roseville on Saturday the 18th, to spend a week with us. We are very excited and anxious about seeing her. We have a week of sight seeing planned. I just pray that I will feel as good as I do this week. Kim says she doesn't care but I hate to see her come this far and not see the wonderful history this city has. So if you will pray for a good week for all of us it would be much appreciated.

Well, that's all I have for the moment, will post some photos real soon.

Many Praises to the Lord,
Steph & Steve

Just a Note about last nite's post

Monday, Sept 6 2010 Labor Day





Last night after closing my post and crawling into bed, I laid there thinking of all the blessings that have been granted me that I never mentioned. There are so many such as my father, my grandmothers, the Hankins Family Reunion and all the folks who are no longer walking on earth.
That is the greatest thing about listing your praises, you can go on forever.

Do you think that God only allows us so many blessings then our limit is over? I hope not because he has been so good to me and want so many more.

Yet, one thing I know is that my greatest blessings come from you; family, friends, pets and just people in general.

God is Great
steph

Praises & Prayers

Sunday, Sept. 5, 2010



I have decided to try something different this post. Please just bear with me and let me know your thoughts.


PRAISES
These are things which I am very grateful for.

My husband Steve, who cares for me, worries for me, does all the research and incredible reading that goes with this whole process. He also puts up with my fits (yes, I am sorry to say, I can throw a righteous fit!) supports me when I am in pain, takes care of ALL of my meds, (all I have to do is take them.) He is generous with gifts and anything my silly heart desires. He always puts me first before himself and eats the same saltless foods that I do. I am first and foremost in his life right now. For being such a bulldog and making sure things are done properly. Without Steve I probably would not be alive today. Thank you Heavenly Father for you have blessed me so.

My family for all of their encouragement, concern, phone calls, cards and just wanting to be there. My greatest source comes from my mom, Jane, Aunt Betty, then all of you who call and email and read my blog. You are the greatest family ever and I have loved all of you since I was a child.

My childhood which was rich in family, fun, many great adventures and wonderful folks who enriched me beyond what I would have hoped for. All of my memories are happy and full of joy.

My incredible family in Christ, who pray for me and believe in my healing. It is through them that I also am able to have a greater faith in our Lord. I love it when you all share your favorite scriptures and experiences which open up my heart to Christ.

My doctors whom have stood by me for the past 20 years and gave me the encouragement that I can beat this despite all the doom & gloom. The friendship that developed and their pride in me as a fighter. They always made me feel like I was not their ordinary patient but someone special.

Kaiser Permanente for all of their generosity in their benefits, ease of getting through this process and being able to step out of the box for us to make sure our lives are comfortable and we are taken care of. Not many patients have the advantages that we have through Kaiser and it is very frightening to think that we would have to do this on our own. My heart goes out to those who do not have the benefits that Steve & I have been blessed with.

The Dawson family, who so unselfishly have provided so much for us. The support that they give Steve is amazing and they ask so little of him when he is busy with me. They are doing a terrific job of getting along without him and do NOT put any pressure on him. The employees are also attempting to get along without the control freak of a boss and doing a pretty good job. Once again we are blessed with an amazing family.

Our friends from our horsie friends, neighbors, fire fighter friends and especially all those that we consider "family." They not only support us in spirit but do so much in helping with our home, our animals, and are ready at the drop of a hat do anything that needs to be done. It is truly amazing the things which they have done that shows their love for us. Without them this would be a much more stressful event for us.

For my God, who gives me life and a hope that goes beyond anything I could describe. With God in my heart I am able to live, laugh, dream and cry. Whom I can call on when I am frightened, when I am in pain, when I am doubtful and even when I doubt my faith. I am in His hands and it is His will that will that I will try to understand. Thanks for opening my heart to Christ and His family.

For the days that I feel great and am able to get out and not be "sick". These are precious moments and I raise my hands in praise for these moments as they are so important to us. There are always those who have very few of those days. I am so blessed with these moments that they make my heart sing.

For our incredible children, Rob & Heather and their two precious gifts, Ruby & Bodhi. It is amazing to me that they so want to be here and help us deal with all of this. They are never far away from us and we so enjoy each other. We have been so blessed by their love for each other and for the love of their children. We are so proud of them and may God continue to bless them forever.

I am so thankful for my love of life, for my passions, for my love of animals and for my family & friends. There is not much that I absolutely loathe about my life except my disease and even then I can think of ways that it has enriched my life. I love the God's gift of this earth, of books, of learning, of being able to be busy and active and in grooming, caring & riding my horses. I love the companionship of my dogs and my cats; their unconditional love is always so amazing to me. God truly blessed all of us with the friendship, wonder, and beauty of all life.

While I am sure that is not all it is all I have time for tonight.
There is no importance in the sequence of praises, I only wrote what was in my heart. No praise is greater than another, only that they come from God.

I hope you enjoy reading this as much as I did writing it.

God Bless and Grant You Many Praises,
Steve & Steph

Phipps Conservatory

Sunday, August 29, 2010

Phipps Conservatory, Schenely Park Pittsburgh, PA

These are just a few of the photos, I will try to post a few more tomorrow. I haven't quite figured this part out yet.

Please enjoy!

Steph & Steve

An Average Day...? Not So Average

Wednesday, September 1, 2010





The one thing I have learned that there is no such thing as a normal, average, or routine day around here. The last 3 days have been crazy and in such a way as there is not any warning about what is coming up next from moment to moment.



The morning may begin like any other day; nice and routine but when the blood work results come back from the lab, chaos could break loose and I end up staying all day. If the blood work results are favorable, we are out of there by 11:ooam. But if not so good, that could mean more IV's, a blood transfusion, a trip to have an CAT scan or x-ray. We even had to go down and have my PICC line redone. This all takes time and can be very tiring. Yet, we are coming to grips with it and just don't plan on anything and are grateful when the day goes our way.

Sunday was a blessed day. We left the clinic at 10:30. So we decided to go out and see Pittsburgh. We chose a park located downtown that has an incredible Conservatory. It is called the Phipps Conservatory and was first opened in 1893. The buildings are all glass and are beautifully built. The conservatory is divided into several sections and the current theme was "Gargoyles meets Gorgeous." Each section was dedicated to different cultures and their ideas on the mythological gargoyles. Each garden was filled with native trees, grasses, flowers & then native gargoyles. It was not only incredibly beautiful but you really got the feel for the culture that each display depicted. The only thing was I got tired fairly easily and after an hour we only made it through approximately one-third of the displays. So we went down to the cafe where we had a delicious sandwich, then proceeded to the gift shop where Steve bought a T-shirt with magic frogs all over it. We haven't seen why they are magic but we get lots of comments on the conservatory. We will definitely go back to see the rest, especially the butterfly house. It was a great few hours and did us a lot of good. A gift from God.

Today's highlight was a visit with the bone marrow specialist. That is a very scary thing for me as they are always doom & gloom or they want to do another horrendous bone marrow biopsy. While he did not spare any of the doom & gloom, he did give us the clearance to go ahead with the transplant. He left us saying that we will probably come back after a couple of years of fair health and need a bone marrow transplant. Oh Joy! I need lots of prayer on that, that is a tough battle on its own. We left very depressed and I was in tears for about an hour. One thing the doctor did say was that the visceral transplant is my only chance of survival and that it was a "no-brainer." It is all in God's hands.

We are anxious to move to our apartment only 2 more weeks, then Kim is coming out for a week, I just pray we have the time and energy to go out and do things. Then Rob wants to come for a few days, I don't worry about him so much as he wants to meet the docs and see what all this is about. I might have a chance to adopt a female jack russell, as long as we can find a "village" to help with her. Steve does not want to worry about her if he has to be at the hospital with me. He got the "village" ideal from good ole Hillary, "it takes a village to raise a child." I can not disagree with him so I have to go with it. If it is meant to be, it will happen.

Okay, thats enough about us for one post. Please let me hear from you all and what is going on in California, Oklahoma, Nevada & Florida. I will post some photos from the conservatory, I hope you enjoy them. Please keep the prayers going.

God Bless & Keep all of You,
Steve & Steph