The past two days have been entirely an excellent moment then a real let down. I think I am loosing my mind, literally. But more on that later.
Wednesday was awesome! We visited the breast surgeon to hear her opinion on the node that they discovered under my left arm. (They removed the lymph nodes on the right side twelve years ago.) Steve and I were really sweating that out but she reviewed all the mammogram and CT scans and it looked clear and was considered fairly small. No concern and no further tests! We jumped for joy and gave praise and thanks. Then our next appointment was with the kidney doc. He is from UCSF and knows our docs from UCSF, so it was like old home week. He explained about my left kidney and what is going on. The studies completed showed that the left kidney, while it has a blockage, was still working at about 40% and fairly healthy. Again we were walking on clouds and giving praise. Then we had a meeting with the dietitian and she put me on diet of eating 6 meals a day with 2300 calories, 90 gms of protein and lots of fat. I am not so sure about this, I've always been so careful about what I eat. It was a great day all the same. Then to top it off our nurse coordinator calls and tells us that they are going to present our case to the selection committee and that she would call us Thursday morning. YEAH, the Lord is with us.
So on Thursday I have no appointments or procedures. We get to relax...kinda. So this morning a different nurse calls regarding my bone marrow biopsy that is scheduled tomorrow. She asks some questions and then goes "Oh, you have been selected." We danced and screamed through out the "hole." Then she calls back and says, "That is as long as the biopsy comes back without anything bad." Of course she added that they didn't think anything would show up. Now total devastation. But we decided that the Lord would not take us this far and then pull it away from us.
So we drove to St. Augustine, the oldest city in the USA. It was discovered by Ponce de Leon while he was searching for the Fountain of Youth. He thought he found it at St. Augustine and started a community in 1560. There is so much to see and is so beautiful. The beaches here are the prettiest we have seen. We did not get to see everything so we plan on going back.
While in ole' town we found a shop with some shirts that I can wear. So I was in this little dressing room and Steve was handing me the clothes. I came out with a top that I decided didn't work and instead of waiting until I was safe in the dressing room, I just pull it off in the middle of the shop! Steve about had a heart attack. WHAT WAS I THINKING? I am sooooo brain dead that I am dangerous. Will I ever be normal again?
Please give me prayers for the successful and clean bone marrow. I am terrified to have it done, it is soooooo painful and I am so tired of being stuck all over. We will find out the results on Wednesday, let us hope they don't think up another test before then.
That is enough for now. Thank you for all your prayers and thoughts they really mean a lot to us. We will be in touch soon.
trying to stay sane,
Steve & Steff
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Hi Steff,
ReplyDeleteGirl, it does sound like you have been on a ride. You poor thing:( Hang in there. Remember how big our Lord is and how much he loves you. He will be with you. I continue to pray for you and you are in my thoughts.
Oh, and keep your shirt on!!!! LOL
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